Awareness to Action:Exceeding Goals in Rare Disease Lead Gen

Acromegaly is a rare endocrine disorder that is often misunderstood, misdiagnosed, and isolating for patients. For some, the road to diagnosis can be long and arduous, meaning simply receiving treatment can make a big difference—and “better” can feel like “good enough.” But symptoms can still persist, and true disease control may remain elusive. The goal of the campaign was to encourage patients to look more closely at their symptoms and recognize the two sides of acromegaly: keeping insulin-like growth factor 1 (IGF-1) level in check and managing symptoms.
To address this, we partnered with Crinetics Pharmaceuticals to launch Acromegaly Reality—a disease state awareness campaign designed to shed light on the realities of living with acromegaly, foster connection within the patient community, and empower individuals to seek support.
At the heart of the campaign were real patients whose authentic stories and imagery grounded the effort in empathy and credibility. Through compelling visuals, relatable narratives, and educational resources, Acromegaly Reality invited people affected by acromegaly to see their experiences reflected and validated. The campaign launched on Facebook and Instagram, directing audiences to AcromegalyReality.com, a dedicated hub offering tools, insights, and a “reality check” self-assessment to help patients better understand ongoing symptoms, evaluate their disease journey, and take more informed steps toward lasting control.
The campaign quickly exceeded expectations. While our initial goal across all digital platforms was 3,500 leads, we surpassed this milestone in less than three months, ultimately delivering over 10,000 leads in Meta alone. Alongside this, the social campaign generated 139,000 link clicks and 7.2 million impressions