MUSE Gold

2024

Rare Connections in NMOSD

Entrant Company

Alexion Pharmaceuticals

Category

Video - Cause / Awareness

Client's Name

Julie Block

Country / Region

United States

Rare Connections in NMOSD is a groundbreaking short film from Alexion, AstraZeneca Rare Disease, designed to raise awareness of NMOSD, drive connection within the global NMOSD community and spark dialogue about health equity in rare disease. The film elevates patient voices to drive education, furthering efforts to reduce time to diagnosis and improve patient outcomes. Alexion has a longstanding commitment to the communities they serve, which goes beyond developing therapeutics to help close gaps in treatment, care and access.

The film brings together three patients – Craig, Alex and Marie – to share their stories and uncover the connections between them through the exchange of personal letters. Their raw, honest letters underscore the debilitating impact of NMOSD and reflect the challenges that many people with rare diseases face: misdiagnosis, feeling dismissed and isolated, and lack of access to care. However, the true power of the film lies in witnessing these individuals discover that they are united not only by their diagnosis but also by their resilience, determination, and an inherent need for community.

Rare Connections in NMOSD was first debuted in March 2024 to the NMOSD patient and caregiver community, and then premiered for a broader audience in April 2024 at the American Academy of Neurology Annual Meeting. The film is currently available to stream on Alexion’s global YouTube channel and there is an accessible version available to ensure those who are visually impaired can experience the film in a meaningful way.

Since its premiere, the film has reached thousands – including patients, caregivers, healthcare providers and the general public:
- 35,500+ views on Alexion’s YouTube page
- 100+ attendees at the NYC community premiere
- Screenings at leading neurology medical congresses, including the American Academy of Neurology and the European Academy of Neurology

Credits

Senior Director, Pipeline and Portfolio Communications, Alexion Pharmaceuticals
Beth Preston
Director, Neurology Global Product Communications, Alexion Pharmaceuticals
Julie Block
Head, Global Corporate Affairs, Alexion Pharmaceuticals
Tamar Thompson
Director, Patient Advocacy Neurology, Alexion Pharmaceuticals
Kaitlyn MacCarrick
Agency Support, Syneos Health
Alicia Pirraglia
Agency Support, Syneos Health
Rachael Adler
Agency Support, Syneos Health
Cassie Rudd
Agency Support, Syneos Health
Alex Elovic
Agency Support, Syneos Health
Lyndsay Lapidus
Agency Support, Syneos Health
Alyssa Horton
Creative Support, Syneos Health
John Reid
Creative Support, Syneos Health
Steff Carey
Creative Support, Syneos Health
Jeff Abelson
Creative Support, Syneos Health
Nicholas Christoff
Creative Support, Syneos Health
Tim Finn
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